Qualitative exploration of the role of caregivers in alzheimer's dementia Sharma Tarun Kumar, Sheikh Mubina Department of Psychology, Mohanlal Sukhadia University, Udaipur (Rajasthan) Online published on 27 October, 2023. Abstract The objective of this study was to understand the roles, responsibilities, and challenges faced by caregivers of dementia patients. Data was collected through telephonic interviews with a sample of ten family caregivers located in three different cities in India. Professional caregivers were excluded from the sample. Excerpts of the interviews were analyzed by using thematic analysis. Caregivers responses were studied in detail multiple times to generate initial codes from textual data. Eight themes depicting the role of caregivers were identified Themes that emerged include babysitting and 24-hour nursing care, ensuring patient safety, convincing and consoling the patient, regulating emotions, managing time and household work, financial planning and management, multi-tasking, and balancing, pre-planning, organizing and observing etc. The interpretive paradigm helped in developing an in-depth understanding of the caregiver s perceptions and lived experiences. The research has some obvious limitations associated with a qualitative framework. Top Keywords Dementia, Alzheimer's disease, Caregiving, Caregiver role, Family caregivers. Top |